Luxembourg’s Prince Frederik Dies at 22 from Rare Genetic Condition: ‘He Is My Superhero,’ Says Dad Prince Robert
The young royal, who was born with POLG Mitochondrial disease, died on March 1
GRAND DUCAL FAMILY OF LUXEMBOURG/INSTAGRAM
Prince Frederik, the youngest son of Prince Robert of Luxembourg and Princess Julie of Nassau, has died. He was 22.
Frederik died on March 1 from the rare genetic condition POLG Mitochondrial disease, his father announced in a heartfelt message posted on the website for the POLG Foundation, an organization founded by Frederik to help find treatments and a cure for the illness.
“It is with a very heavy heart that my wife and I would like to inform you of the passing of our son,” Robert, 56, began his lengthy statement.
Detailing that Frederik “called us in to his room to speak to him for one last time” on what marked “Rare Disease Day” on Feb. 28, the royal explained that his son “found the strength and the courage to say goodbye to each of us in turn — his brother, Alexander; his sister, Charlotte; me; his three cousins, Charly, Louis, and Donall; his brother-in-law, Mansour; and finally, his Aunt Charlotte and Uncle Mark.”
“He had already spoken all that was in his heart to his extraordinary mother, who had not left his side in 15 years,” Robert continued of wife Julie, 58.
GRAND DUCAL FAMILY OF LUXEMBOURG/INSTAGRAM
According to Robert, Prince Frederik gave varied goodbyes, “some kind, some wise, some instructive,” and, “in true Frederik fashion, he left us collectively with a final long-standing family joke.”
“Even in his last moments, his humor, and his boundless compassion, compelled him to leave us with one last laugh, to cheer us all up,” the proud dad continued.
Prince Robert then detailed that his “beloved son” asked him a final question “prior to his other remarks” before his death: “Papa, are you proud of me?”
“He had barely been able to speak for several days, so the clarity of these words was as surprising as the weight of the moment was profound. The answer was very easy, and he had heard it oh so many times, but at this time, he needed reassurance that he had contributed all that he possibly could in his short and beautiful existence and that he could now finally move on,” Robert said.
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“Frederik knows that he is my Superhero, as he is to all of our family, and to so very many good friends,” Robert also said in his statement, later adding that his son “was born with a special capacity for positivity, joy, and determination.”
“When he was little, I would always say that if there is one child of ours that I would never need to worry about, it was him,” he continued. “He has social skills like no other, an amazing sense of humor, an emotional intelligence and compassion that were off the charts, a sense of justice, fairness and decency that knows no bounds. He was disciplined and organized beyond belief.”
Robert then stated that Frederik was “particularly headstrong (at times, I might have used the word stubborn).”
“As his siblings and most anyone who ever met him say, ‘Frederik is the strongest person that we know!’ ” the royal further explained. “Frederik fought his disease valiantly until the very end. His indomitable lust for life propelled him through the hardest of physical and mental challenges.”
GRAND DUCAL FAMILY OF LUXEMBOURG/INSTAGRAM
Frederik was born with POLG Mitochondrial disease, his father wrote, though his family did not know it at the time.
He was later diagnosed at age 14, “when his symptoms were showing more clearly and when the progression of his disease had become more acute.”
The disease, according to the POLG Foundation, “is a genetic mitochondrial disorder that robs the body’s cells of energy, in turn causing progressive multiple organ (brain, nerves, liver, intestines, muscles, swallowing and ocular function, etc.) dysfunction and failure.”
Despite Robert describing Frederick’s illness as a “burden that he had to carry throughout his life,” the royal, who is the first cousin of Grand Duke Henri of Luxembourg, said his son always handled uphill battles “with grace and with humor” and was beyond proud of the work he did with the POLG Foundation.
Robert pled with those reading the tribute to donate or volunteer with the organization in memory of his young son.
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Luxembourg Prince Dead at 22 After Battling Rare Disease
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Prince Frederik of Luxembourg died at age 22 after his battle with POLG Mitochondrial disease, a rare genetic disorder that affects how cells produce energy. His father, Prince Robert—the first cousin of the Grand Duke of Luxembourg—announced his death on Instagram on March 8. “It is with a very heavy heart that my wife and I would like to inform you of the passing of our son, The POLG Foundation Founder and Creative Director, Frederik,” Robert wrote. “Last Friday, February 28th, on ‘Rare Disease Day’, our beloved son called us in to his room to speak to him for one last time. Frederik found the strength and the courage to say goodbye to each of us in turn.” The young prince died surrounded by loved ones, asking his father, “Papa, are you proud of me?” Robert wrote that his son had trouble speaking for several days beforehand, “so the clarity of these words was as surprising as the weight of the moment was profound. The answer was very easy, and he had heard it oh so many times…. but at this time, he needed reassurance that he had contributed all that he possibly could in his short and beautiful existence and that he could now finally move on.” Prince Robert explained that his son was born with the rare illness but was only disnosed at 14. POLG Mitochondrial disease “robs the body’s cells of energy, in turn causing progressive multiple organ dysfunction and failure,” according to The POLG Foundation.
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Prince Frederik of Luxembourg dies at 22 from POLG mitochondrial disease
Prince Frederik of Luxembourg has died at the age of 22. Photo / @royalsofluxembourg
Prince Frederik of Luxembourg has died at the age of 22.
The royal – who was the son of Prince Robert of Luxembourg and Princess Julie of Nassau – passed away on March 1 following a long battle with a POLG Mitochondrial disease, his father announced on Saturday evening, March 8.
In a message posted onto the PLG Foundation website, he said: “It is with a very heavy heart that my wife and I would like to inform you of the passing of our son, The POLG Foundation Founder and Creative Director, Frederik.
“Last Friday, February 28th, on ‘Rare Disease Day’, our beloved son called us in to his room to speak to him for one last time. Frederik found the strength and the courage to say goodbye to each of us in turn – his brother, Alexander; his sister, Charlotte; me; his three cousins, Charly, Louis, and Donall; his brother-in-law, Mansour; and finally, his Aunt Charlotte and Uncle Mark. He had already spoken all that was in his heart to his extraordinary mother, who had not left his side in 15 years. After gifting each of us with our farewells – some kind, some wise, some instructive – in true Frederik fashion, he left us collectively with a final long-standing family joke.
“Even in his last moments, his humour, and his boundless compassion, compelled him to leave us with one last laugh….to cheer us all up.
“Frederik’s last question to me, prior to his other remarks was: ‘Papa, are you proud of me?’
“He had barely been able to speak for several days, so the clarity of these words was as surprising as the weight of the moment was profound.
“The answer was very easy, and he had heard it oh so many times…. but at this time, he needed reassurance that he had contributed all that he possibly could in his short and beautiful existence and that he could now finally move on.”
The POLG Foundation website explains that the rare genetic disorder is a genetic mitochondrial disorder that robs the body’s cells of energy, in turn causing progressive multiple organ (brain, nerves, liver, intestines, muscles, swallowing and ocular function, etc.) dysfunction and failure.
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